A spot of Dr bashing

I suppose that it comes with no surprise that those of us who live with chronic illness, aren’t immune to the odd spell of “Doctor Bashing”. Let me point out here, that the word “Bashing” is being used in the verbal connotation, not the physical one. It’s not that we don’t appreciate, the things they do to makes us feel better, or that all of us, blame them directly, for either our health or for the fact they can’t fix it. No, I believe that it’s far more complex than that. Without a doubt, the majority of patients, that any family doctor sees in one day, will be those who are living with one chronic illness, or another. We are the people who fill their waiting rooms, mainly quite justifiable. Of course, take a cross-section of the public, and you will find some needy people, as many of them, as of those with more resilience will become ill. But the majority, will be there with genuine concern about some part of their health. Despite what some people think, the majority of us, actually don’t want to be going to see our doctors yet again, than anyone else does, but we can’t avoid them. We have over the lifetime of our problems, met every type of doctor possible. From the gushing, over caring and almost suffocating, right down to the cold couldn’t give a damn, “what are you doing here annoying me?”, pain in the necks. We have had to deal with the doubters, the dismissive, the converts and the know it alls. There isn’t a personality type of doctor that we haven crossed paths with and that is where our problem begins.

Personality and medical know how, aren’t the same thing. If you have been battling with your health for years, the thing we all look for is, the Dr who seems to understand what we are going through. The Dr who empathises and is eager to help us, someone who is going to go the extra mile. Unfortunately, this can mean that we latch onto the person who we like, rather than the Dr who can actually help. I know we all like to believe that our family Doctor, knows everything, sorry, but they don’t. Think about it, why do they send us scurrying to the hospital to see someone else? If they knew everything, they would order the tests and diagnosis us themselves. Yes, they can order every and any test you can think of. We don’t have to see a consultant, to get an MRI, our GP can order them too. The thing is, though, we don’t choose our family doctors because of their prowess with a scalpel, we choose them because we like them. We chose him because he can get the best out of our kids, Granny raves about him and you’re happy to sit and chat to him. Ask yourself, what does that sound closest to, to you? A well qualified professional, or a friend? Did you investigate all the medical practises in the area, or did you choose thanks to a recommendation from your neighbours, or worse still, because it was the one closest to your house? I have known an awful lot of really nice people, very few, really good Doctors. Having found this jolly good chap, we then slag them off for their first tiny little thing that we disagree with. We don’t talk to him about it, that would be disrespectful, after all, he’s our Doctor. No, we moan and grown about him to anyone else out there who might just listen, and so our “Doctor Bashing”, begins.

Chronic illness, of course, means we scurry off to the hospital a lot more frequently than other lesser mortals. We are there with laborious frequency, prodded and poked at by stranger after stranger, foist upon us by the NHS. There is no choice, no selection, we need a consultant in this or that field, and that’s what we get, the next one available. This time, Granny didn’t recommend them, no one can tell you what his favourite aftershave is, he is a total stranger, and we all know about “stranger danger”. We do our homework, we investigate everything we can about what we are going to see them about, as well, we don’t know how good a Doctor they are. If we don’t arm ourselves with the details, if we don’t have every angle covered, well who knows what might happen. We might let this well-educated person, way beyond our half an hour online, to actually do their job. Think about it, if you had spent 7 years at university, another 10 or so years at least, working alongside experts to hone your skills, before being given the accolade of “Consultant”, wouldn’t you get your hackles up slightly in having to deal with your 10th internet master of the day. But most don’t, they give a rye smile, a sigh and get on with the constant battle of proving just what they know. All too many don’t take kindly to the fact that our internet revelation hasn’t been greeted with shock and adoration, that they weren’t totally impressed, rather than crestfallen. Then leave muttering, “He wasn’t even listening to me” and once more the “Doctor Bashing” begins.

All of us are sheepish, scared and uncertain until we get that diagnosis, the thing that all this Doctor visiting was originally about. When you don’t know what’s wrong with you, it’s hard to be anything else. If we’re lucky, it is a straightforward process, weeks or at worst months, for others it’s years. Imagine how many Doctors you see in years of trying to find out what is wrong with you. Now imagine what that does to how you see Doctors, how you see yourself and how they see you. You have tried every tactic, approached each meeting in a slightly different manner in case, just in case, it’s you not them, but you have a growing belief that it’s them. It’s hard to not let that show, to not get their hackles up from the very first “Hello”. The more Doctors we see, the less we believe, the more returners they see, the less they believe. The vortex is tightening and our intensifying “Doctor Bashing” that evening, is probably equal to their “Frequent Flier Bashing”, both deeply misplaced. With luck, the light bulb eventually lights, they and you, know what is wrong, so it should be an easy jog from then on, shouldn’t it? You jest, it’s only just begun.

Firstly, we want them to cure us, they can’t, then we want the pain gone, it’s not, we want to feel better but we don’t. The opportunities for misunderstandings, disappointment and disbelief, has just begun. What we expect from our Doctors is nothing short of miracles, what we get is a dull reality that can never match up. There always has been and always will be a wide mix of good, bad and indifferent Doctors, just as there is a wide mix of good, bad and indifferent patients. That Doctor you quite simply can’t stand, who for the life of you, you can’t understand how they ever even got the title Dr., is the identical person to the one, the patient before you, raves about. Unfortunately, “Doctor Bashing” has little to do with our doctors medical ability, rather than their ability to read us, be nice to us and to send us on our way saying “What a jolly nice chap or chapess”. Is it really a wonder that the biggest problem of the time, is the overuse of antibiotics? Show me the person who doesn’t want to take a know it all, loud mouthed person and shut them up and out of our sight as fast as possible. That person demanding the drug they believe is the answer to their health or their child’s health, are all too often these days abusive and intimidating. It takes a strong person to tell them they are wrong and their not getting it. It is just the same, be it a painkiller or the drug that will keep them alive for the another 6 months. Our Doctors can’t win and personally, I think that is all wrong.

At one time, we all had a true repect for our Doctors. I agree, putting them on the pedistals they once lived on, was possible going to far. But from what I hear and have even seen, I think we have gone too far the other way. For any of us, who have ever worked in a customer facing role, we know just how hard the public can be to handle. If you try to add in, that the person is ill, worried or possible terrified, without a doubt, those people are going to be even harder to deal with. I put my hand up, yes I have entered into the odd spell of “Doctor Bashing”, although, I would say in my defence, it is the odd spot and always short lived. I am human, we all get involved in “People Bashing”, it’s one of our weaknesses. In general, I am more than grateful for what my Doctors have done for me over the last 14 years, but clearly I understand what sparks it. The next time though before I or you do such a thing, just think first, are you “Bashing” the profession, the person or possibly, yourself? It’s always worth checking.

 

Please read my blog from 2 years ago today – 09/12/2013 – Beaten up and waiting

I have no problem remembering what I am going to write about today as I can still feel it. I woke yesterday from my afternoon nap with both my thighs in spasm, that for me is a really odd thing………

The mark of surviving

This is the third day in a row that I haven’t felt well and in fact it is the worst yet. I am not inclined to be a person who goes to bed when I am not feeling well but I was fighting it this morning as that is exactly where I want to go right now and ever since I woke up. I don’t think the house being cold is helping but as I said yesterday I can’t really afford to put it on yet, so I just have to put up with that one. I feel nauseous and keep having chills, Adam asked the question that I asked myself several months ago as to am I maybe in the menopause as I have also been getting spells of sweats as well, but there is a problem in my being able to know if I am or not as I had a hysterectomy when I was about 25, I know it was young but I needed it. I have to say that I was the opposite to what most women seem to be on this subject. Personally I would say it was one or the best thing that ever happened to me! I didn’t want anymore children and was 100% sure about that, so getting rid of my periods was wonderful! I have never understood why so many women find it a really difficult thing to accept and seem to fight tooth and nail to hold onto something that is useless and annoying, if you don’t want kid, you don’t need it. This is the first time I have found any problems following the op as the monthly cycle change is what tells most women that the menopause is happening. Other than temperature control I don’t have anything else that says it is happening and it could have already have happened and be over with, who knows.

I don’t know what it is about me that is different but having my hysterectomy was as easy to accept as it was for me to accept that I am housebound or that I have MS. I wish I could work out why I accept and adjust so fast to things, the only thing I can think of was the mad childhood that I had where I had no choice but to go with the flow taught me that change isn’t always bad and horrid things happening normally lead to something better in the end, I learned how to become a survivor at an early age. It maybe just that, that I learned the tough way early, but I can actually track back further as my Mother said that I was the most content baby she ever came across, I didn’t have tantrums and I could be left on my own for hours as I would be happy with a few toys in a circle round me, I just kept going round that circle playing with each one in turn. I was apparently over content as I didn’t bother to walk until I was two and half, I clearly couldn’t see a reason to bother with it.

I have analyzed in my head often why I am the person I am, and why I haven’t reacted to the things that others seem to find hard. I don’t think that there is one thing that makes me who I am. I do believe that the starting point is that baby who didn’t find the world a frustrating place and was happy to go with things as they were. I was some how born contented and regardless what has happened I have stayed that way at heart, oddly with a good smattering or ambition and drive. Having said that I also believe that that contentment can be learned, it isn’t easy and won’t happen without changing many things in your life but contentment is a state of mind and like any state of mind it can be nurtured and built on.

Who you are when you are born is going to effect you and drive you through out your life, what happens to you will add to and change you. As an adult how you react to the harder things in life I feel strongly is something that you choose and is not just the way it is. I am an easygoing person inside and a fighter/survivor at the same time, I choose which side of me I handle a situation with and I add in what is needed to deal with it through adapting. I think we all have two sides one from birth and one that is learned, it is how we use them that is the important thing when it comes to being a true survivor and being open to changing your attitudes.

Three groups to look at

Change, probably the hardest word in the world. Just the word is enough to send some people into a flap and believing that there is no way they can do it. As an Operations Manger managing change was part of my job, I saw many who struggled with the smallest change in there otherwise maintained position, people who would be almost in tears as they were informed that something simple in their daily routine had to change for the efficient running of the company. If you have ever been faced by an entire call center and watching their faces while the center manager is explaining why the shift system has to change. Some people say OK without waiting to hear what it really means, some say OK and add a but, other without detail of any type react as if the end of the world has happened at that second. The group that I found really did deal with change the best were the middle group, they were logical about it and listens in a level headed way, ready to here the reasons and open to even suggesting alternatives. I think this group would also be the ones you find stepping into a world of chronic illness with a greater ease.

I am one of those people, I remember crying when I was told I had MS, crying a lot, I am not superwoman or made of iron, I was scared and all the other natural reactions. Once the tears stopped I then started the questions and the offering answers. When I became housebound, I didn’t really remember crying, this wasn’t to me an emotional point it was a point to manage my change and to find the good and bad points logically, as I have continued to all the way though. Loosing my job last year was again an emotional point, but again I moved into the question and solution phase. On the surface some would argue with me over me being in the middle group and the reason they would argue with me is simple, the damage I have due to the lesions mean that I cry when it means nothing and I shouldn’t and it is so hard to explain that when you have tears rolling down your face. So ignoring that, I am in the middle and I believe that if you are, you too will find adapting to almost anything easier. To manage your own illness and your own life with it, is not really different to managing your career and what changes in that. Illness controls your life just as your boss does or did, so you plan around it. Setting your goal, arranging your progress and adapting daily to what is possible. For someone like me that is the logical approach and one that for me has actually worked. People in that middle group don’t giving in when there is another option, but comply when there isn’t.

The final group, well they make things difficult for themselves as they jump to conclusions, convincing them that what they think is wrong, getting them to listen and actually engage with the situation is really hard. They instantly made a decision and they don’t believe what they are told because of their decisions. Should they decide that life once chronically ill will be unbearable, then it will be, they make it unbearable for themselves. I have found myself spending more time with them than others. Finding the reason they think what they think is always the key, find that and they find it easier. When their barriers are high then the problem can be almost impossible to over come. I have met others with MS in this group and they are the ones who don’t even want to consider that there is a way though, they are normally the people who say they will try something and normally don’t, as they had their fingers crossed behind their back when they said it, and actually don’t even try as they don’t believe it will work. Belief is the key and that is individual to each of them, once they do believe thought they progress quickly it is the initial belief that they have to find.

Back to front I know but I have left the first group to last, as they have always worried me, no one cares that little, no one just shrugs their shoulders and accept everything that happens to them without any question or reaction. I didn’t worry about them as employes, they made my life easy, but I worried about them as people, I worried that they were just shoving everything into a corner and locking it there. I worried that one day they wouldn’t be able to lock them in there anymore and all of it would tumble out all over the place. We all know these people, they are actually normally fragile, their packing into the corner eventually explodes and they find they didn’t cope as well, as they tried to tell everyone they do and what does it matter anyway. Even as a friend I have never known how to advise on anything and they leave me at a lose. I always find myself caring for this group and I turn into a mother hen without meaning to.

Three groups which if we are honest, we can see ourselves in one or occasionally in two, there are always boarder liners. Three groups I found through my working life and I believe are the same groups when it comes to dealing with illness and being housebound. If you know your group, well I think you can then use that knowledge to understand yourself and how to manage your situation so you still have as good a life as possible, because when it comes down to it, it is our own personality, our own strengths, our own weaknesses that dictate how we live and find happiness.