You got’a laugh

Teressa phoned last night, it’s always good to hear from my daughter, but what she told me, didn’t really sink in until much later. She too is on her way to see a doctor today, with regards to a mole. Oddly, I suppose, because I told her about mine first, I didn’t realise she was calling possibly looking for a bit of reassurance from her Mum. Even odder, I think I gave it to her without realising at the time. Despite the fact that we have spent the majority of her life with millions of miles between us, we have always had a really good relationship. I would say that we have a great combination off all the things that make people belong together. We are so alike in personality, both caring, both sarcastic and both quick witted, not just in the comical sense, but in what is really going on around us, and we both share a raft of interests. So after giving her my good news about my mole, when she mentioned hers, I didn’t even consider that she might really be worried about it. I did what I always do and what she does too, made light of it, talked about it, but also quickly turned it into a joke and something of no real importance. Her one is in her armpit, and when she said that she didn’t think it was going to turn out anything serious because, she “didn’t walk around throwing my arms in the air, so the sun could get to my armpits.” I just answered, “Well, I don’t know Teressa, you do do some pretty odd things” we both just laughed, her, far louder than me. We talked for about half an hour and ended our call with her still laughing after one of our usual put the world right in comedy chats. I may not have picked up on her fear, but I still did the right thing, I made her feel good.

I know better than many, that people reaction to health varies wildly. But I don’t care what anyone says, even if your doctor has just given you a death sentence, laughter, is almost always the best reply to what life has dealt out. I have never been able to get my head around this attitude, that the scary things in life have to be spoken about in whispers. Whisper it, shout it or laugh about it, it won’t change what is happening, but it could just change how you feel about it. I have told the story of my reaction to my diagnosis often enough, but I have also read and heard first hand the reactions of many, many very different people. From what I have seen, those who then go on to handle their health the best, are the ones who have quickly and I do mean within days, taken an upbeat reaction to it. For me, it was a natural reaction, not one that I had to think about, or even make a conscious thought through reaction to. Life had taught me that wallowing is a negative reaction and only pulls you even further down. I personally, though, hate those people who tell you, “You have to stay positive”, yes, you do, but unless you know how to do that, it is as useless a thing to say, as “They will find a cure soon”, to a cancer sufferer, with six months to live.

If you think about it, the people who are raved about as being great nurses and doctors, are usually, yes, good at their jobs, but they also radiate a positive aura. They smile, they joke and they are the ones who patients sit up in their beds and beam when they see them walking towards them. What makes them great, is the fact that they make people feel good, not better medically, but better mentally. I honestly believe, that even if your not a naturally positive person, or you haven’t learnt it values through trauma, you can learn it from those around you. Surround someone in misery, and they will become miserable, surround them in happiness and they will equally become happy. Even if you are a miserable git, like it or not, if you want to survive your chronic illness for as long as possible and with as good a life throughout as possible, you have to surround yourself with happiness and laughter. Sorry if you cringe at the very idea, but it is the only way. On the good side for you misery guts, is it doesn’t have to come from people, it can come from your environment and how you spend your time. It’s about having a positive impact on your life, not anyone else’s, as happiness is personal, if it’s good for you, then it’s good for your health.

Just as much as I recommend, that everyone checks their posture multiple times throughout the day and release any tension within their muscles that they find. I equally recommend that you check your mood as well. Good posture and removed tensions, can without a doubt, reduce overall pain levels. If you don’t believe me try it. it works. So does mood checking. It doesn’t take long and it isn’t difficult, it’s as simple as just asking yourself “am I happy?” I don’t mean in the regard to life, although I do recommend doing that every six months to a year, and do so seriously. I have had to change my life totally several times because of an “NO” answer to that one. This though is a much gentler and more immediate question. “Am I happy at this minute”. Your brain will answer more honestly than you expect, mine has even thrown tears at me, when I thought things were fine. We all have our own way of giving ourselves a boost, from a piece of chocolate, a few exercises to get the blood flowing, or even a cigarette and a few minutes just to gather your thoughts. If you work on checking and lifting your mood throughout the day before it slides down into a spiral, you can improve your whole day. Like everything else, the more you practise this, the better things get and it becomes an almost automatic thing to do because you are more self-aware. Although it might sound odd at first, it also plays a role in those pain levels, but it’s logical when you really think about it. It is a fact, the exact same pain never feels as bad when you are mentally up, as it does when you’re in the pits.

No matter what we do, we can’t be happy and smiling all the time. Life has it’s ups and downs, that is just the way it is. But we can make a huge difference ourselves, and it’s well worth the effort. If you thought that the day you gave up work because of your health, that the work was over, you’re wrong. Remove the normal routine and structure to life, and the work just gets harder. We can’t rely now on the people around us to notice if we are a little down, they aren’t around us any longer. Neither are they there to make us laugh occasionally, or to fetch us a coffee to give us a boost, we have to do it all ourselves. We might be alone, but the fact is we have to be every single one of those people, who we no longer see. How we do that, takes an array of tricks. Most we have to learn for ourselves, as being individual, what makes life right for us, might not be what is right for another. Some though are basic. We all need to have goals and we all need to achieve, and we need to do it daily, something else, that work supplied that is now gone. Hobbies help, but as I found, my health made all mine impossible. Goals though can be as simple as having a bath or plucking your eyebrows, whatever is needed, or will help to make you happy. Finish that book, clean your jewellery, polish your shoes, write a book, it’s up to you. Outside the medical solutions to our health, nearly all of it comes down to just one thing, being happy. Even those exercises to help reduce your pain, ultimately that is about happiness, as less pain always makes anyone happier.

Call it happiness, or being positive, what all of it is doing is letting us live with the most horrendous thing that can happen to anyone, being told that our health is in the midst of destroying everything, we have ever known, or had planned for the future. The world will never be the same again, fact, accept it, and build yourself a new life. This is our chance to build a life that will take us to our last breath, so it has to work and we have to be happy. It cost none of us anything to try and make the most out of what we have. Ask yourself, do you want a life of misery and pain, or, do you want a life of happiness? I don’t think it should be a question that anyone should even have to ask. It is also a fact, that all of us have the tools to do so, we all have a brain, it just needs training.

Please read my blog from 2 years ago today – 20/10/2013 – Drifting through happiness

There is something wonderful about a Sunday morning, especially when it is cold and there is a feeling of winter in the air. I have always loved that feeling when you keep the curtains closed and the fire is lit adding….

A great day

I had a really great day with Teressa yesterday and like a lot of things in life, it was over all too quickly. My guesstimate on the time she would actually arrive was almost spot on, so I managed to have all that I wanted to do before the doorbell rang. As always when she came through the door I had my normal reaction to her height, it doesn’t seem to matter how often I see her as an adult I will never get used to the fact that she is so tall, which kind of makes her childhood nickname of ‘midget’ all the more ironic.

We spent the first couple of hours talking about my health and her wedding which I, of course, have loads of things that I can’t write in her yet. The actual date seems to be the thing that is holding back on completion of the day, until all the paperwork is in order in the US and here in the UK for John to return here on the correct visa, that can’t be set, they hope to know by the end of this month if the present date of the Jan 24th will actually be the day, or if it all has to be changed. She has managed to arrange most of it with the elastic date, the venue has even been happy to allow for this but if it has to be changed, they will probably have to go with the day the venue has available more than the date the want it to be, but they are happy to go with that. I wish I could put more in here about the plans but well secrets are all part of planning a wedding, all I will say is that not just because she is my daughter but because it is true, she is going to look amazing on her wedding day as she had brought some picture to show me.

We, of course, spoke about her fiance John, but I realised later that I had actually not asked one of the questions I expect most parents would have about him. I really didn’t ask about his background or work or any of those things and it wasn’t because I wasn’t interested, it was simply because none of those things mean anything to me, I just wanted to see in my daughter’s eyes that she loved him as much as I thought she did and that she was sure about what she was about to do, those questions were answered without being asked. When you see your own child happy and set with confidence on their chosen route what more can any parent ask, her happiness shone from her. The afternoon was a total mix of general chat and silences as I lost track, again and again, I found myself constantly apologising and Teressa spent just as much time telling me not to. It is really hard even though she is my daughter to not apologise to someone who you know isn’t used to being around you for long periods of time.

At about 4:30 I suggested we had a gin and tonic, yes I needed a little Dutch courage which as I expected was found about half way down the glass. I was as I suspected right, not totally, but yes she had returned to the UK as she was worried that something might happen to me and she wouldn’t be here, close enough to come and see me. The discussion circled through different areas but her words were as filled with feeling as mine were, I already knew that part of her return here was because of the job offer from Sega UK. Almost as soon as they made her redundant in the US they offered her a promotion and all travel expenses to come to the UK, but I also knew she had been thinking of coming home before that offer was made. My health had had a bearing on her decision to accept the offer, I am still not sure how to feel about that, honored is probably the closest description, but I made her promise me that should any opportunity arise in the future that she isn’t to consider me above what it offers as I want her to live her life to the fullest, as well you never know when something can change so dramatically that you might not be able to do it later.

By the time Adam came home the tears were cleared and we had said what we both needed to say as I wasn’t the only one who had things that needed to be said, she had many things she needed to confirm to me and I suppose explain her feelings. It isn’t often in life that we take the time to go into difficult things to talk about, but it is I think good to do so rather than just let them stay silent. The impact of MS is so cruel on those around you, and the only regret I have in my life is one I can never change and that is the impact on those around you. It also leaves me with a guilt that I will never be able to stop feeling for the knock on effect is uncontrollable, as I said to Teressa yesterday in some ways for me it is harder to watch the lives of other being changed around me than it is to live with it at times.

We spent the last few hours the three of us talking again about the wedding and enjoying a now rare treat of a Chinese meal, which I paid for later in the stomach cramps from hell as I was trying to go to sleep. I made it through yesterday without an afternoon sleep, but I have to admit to being over tired today. Just as going out has a knock on effect, so does having a visitor regardless of how welcome they are. I was glad that Adam come home when he did as I could relax more, not feeling that I had to talk all the time and he supplied me with gaps to compile my thoughts slower before speaking. We had a really good day and I was sorry when she had to go but there was an hour long train journey until she was back to where she was staying. I didn’t go to bed the second she went as I wanted to also spend sometime’s with my husband and talk through the day, but about an hour later I went to my bed. Today, well I am really glad I asked what I needed to know and I am at peace with the answers as well.

 

Please read my blog from 2 years ago today – 02/11/2012 – A great day

I had a really great day with Teressa yesterday and like a lot of things in life, it was over all too quickly. My guesstimate on the time she would actually arrive was almost spot on, so I managed to have all that I wanted to do before the doorbell rang. As always when she came through the door I had my normal reaction……

A wedding to plan

I start today with some good news, you may remember that my daughter Teressa returned to the UK just a few weeks ago and her partner wasn’t allowed in and had to go back to the US, telling the truth caused them a lot of pain and they have done what they can to get back together with little luck. Being forced apart like this has though done little other than to make them realise just how much they do love each other and they are now engaged, the wedding is planned to be in either November or December, they hope it can be in the UK as John is going to apply for a fancies visa, so fingers crossed they will get what they have always wanted to just be together. Teressa phoned me last night to tell me before anyone else her news, like me this will be her second marriage and like mine I hope it will be her last. This time round she is going for the wedding dress and all the other timings, her first marriage took place just 5 days after her arriving in the US to see her then boyfriend, unlike now, neither of them had any money so there wasn’t even a new outfit, she married in jeans and T-shirt, they were happy for a short time but in many ways it was doomed to go wrong as they had very different values and could accept them, this time she and John have been living together for a year and they have known each other a lot longer. I was very touched by something she said and that she is already planned to find someone who can film it all on a web cam so that although I can’t be there I can see it all live at the same time. For this to have already entered her head far less her plans is so touching I don’t really have words for it, it has left me a little stunned.

It is major events like this that really leave me cursing my MS, I should be there, watching myself supporting her just as she supported me on my wedding day to Adam. I have made a life within what I can manage but to not be able to see your only daughter on her wedding day is out with anything that I can manage, especially with all the traveling, just getting to London would wipe me out for days, the day several days more and the journey home even more. It isn’t a real possibility just a dream that Teressa is already working on solving. No matter how positive a person you are there will always be hurdles that will destroy your ordered comfortable world by adding longing for something that can’t happen. I have for many years now tussled with this dilemma of major life time events that I am now excluded from regardless of whether I want to be there or not, I can’t.

I know I am lucky that it is only major events and not daily ones that effects me this way, as I am sure that it is those who feel it for daily things, like work, shopping, cinema or whatever are the ones who find chronic illness and being housebound unbearable. I wish there was a formula that I could put together to help them but I think it is something that is within me as a person, not just something I have created, that gives me that base to work around and build on. I can’t really imagine feeling like this everyday, about everything, I will with this sort it into part of my mind where I can build a productive shell to it and I do this with all events, spin was something I learned at work, I spent many hours looking for and adding a positive spin to figures, there is always a positive to find, already I am seeing one if it can bed done as Teressa has friends all around the world so if it is streamed on line it will mean all of them and not just me, will also be able to watch. It will also form a wedding video for them so the positives are starting to build already, give me time I will find many more believe me.

The home coming!

After a week of stress and pressure that I know I have spilled out on to these posts I actually have some good news to finish the week on. Teressa my daughter is returning to live in the UK. She has been working for several years now for Sega in San Fransisco a job she has loved but is now going to be working at Sega UK in London. I am so happy that she is going to be closer, I know London is the other end of the country but it is far easier to come and visit from there, than it is from the USA. It has really been too many years since my little girl has lived here, apart form the 6 months she stayed in Glasgow when Adam and I married, she really hasn’t been here since her early teens when her Dad took her to New Zealand. Although we clearly won’t be seeing each other all the time, we will at least be able to talk, timezones have always been a problem for me and I worried about phoning and waking here, which I did a couple of times. With skype we have to arrange the calls but not in the middle of the night for one or the other. It is a kind of strange feeling knowing that in just another month or so her and her boyfriend will be flying into London to stay. I might actually get to meet this one, as I have never met any of her partners, I didn’t even meet her ex-husband. They say constantly that it is a small world and how fast our modern transport is, how easy it is to just jump on a plane, but they forget always to say how hard it can be, to afford that transport.

Although Teressa has clearly been a world hopper, something I guess she gets from her father, I never have been, I am a home bird. I love flying well if my memory from when I was 12, I love flying, it was just when ever I arrived there I wanted to get on the plane and go home again. The idea of my going to the US was actually always a fantasy that both of us knew wouldn’t happen. Even if I had had been able to afford flights, hotels and all the cost that are attached to time spent away, I think I know in my heart that I would have given her the money to come here rather, than me actually going there. Now well things have changed and I can’t see me ever being able to go anywhere so her home coming party will have to be done on Skype, I’m sure we will manage one of our unusual conversations where we say little and everything, we are so similar that one word often replaces a whole bundle of sentences.

I am also getting more settled into the idea of seeing my GP, apart from one 10 mins spent with a doctor about 3 and a half year ago, it’s 5 years since a proper medical visit. On Monday I am going to start keeping a list of the thing that I need to mention as otherwise I will probably land up saying that everything other than my bowels and legs are fine, I have done that too many times in the past. I think that one though is a universal problem just at it is to say to a waiter that your meal is great when it actually is horrid. I was trying earlier to work out why I feel I waste doctors time and I think it is another one of those things that I can thank my Mother for. I have this vague memory and it is in her voice, telling me to hurry as we didn’t want to waste the Doctors time. I can’t remember when or why, but that sentence is tied tightly to her, like so many other things, several already documented.